Liliana Sue

Liliana has successfully weaned off of the oscilating ventilator and back onto the conventional ventilator. She was switched over on 1/25/06 and is doing really well. We got to hold her for the first time since her muscle biopsy which was a month ago. It felt so good to hold her again. I wish that I could have held her longer. When she gets home I will hold her all day long. They put her in a big girl crib. She has lots of toys all around her. We got to give her a tub bath. She has only had one other tub bath and that was a month or so ago. She seemed to enjoy it. We were at the hospital the day they switched her vent and she was awake with us pretty much the whole 8 hours that we were there. We took lots of pictures of her on her new vent, in her new crib and during her tub bath. Unfortunately, I am not able to post them tonight. I will post them as soon as I can with some more updates. Instead I will just post a couple of recent pictures from a few days prior to her vent change that most of you may not have seen yet. We are so excited that she is doing so well. This means that she is one step closer to coming home.