Liliana Sue

Sorry it has been so long since my last post. Liliana is still doing good and working hard every day to get better. She is getting used to her trach and so are we. She was having some serious problems with mucous plugging her trach and not allowing her to get any air at all. Basically it was choking her and steps had to be taken immediately to clear them out. Fortunately, we have had one of her medications stopped and hopefully this problem will be resolved. Besides that, she has been more awake. I even got a couple of smiles out of her the other day. She is back to moving like she was before the surgery. The nurses have let us start doing more of her care to get us prepared for when she comes home. This is good because even though I am a nurse, working with a baby is much different. She has been tolerating CPAP for most of the day. Her respiratory muscles get tired in the evening and she needs to go back on AC for a while. This is good! Hopefully the more she goes on CPAP, the stronger her respiratory muscle will get. I know she can do it. I wish I had some new pictures to show you, but I don't. Keep checking back though because I will try and get some new ones on here sometime this week.