Liliana Sue

The time is nearing. We have been told that Liliana may be coming home within the next few weeks. It is a possibility that she will go for her third and hopefully final surgery sometime this week. They are going to put in a g-tube, which is a permanent feeding tube through her belly into her stomach. This will provide us with an easy way to make sure she gets her nutrition and medications once she is home. Once she has recovered from this surgery, she is free to come home. This is what we have been waiting over 2 months for. Finally we get to take her home and provide her with a more comforting and developmentally stimulating environment. Now we have to scramble to make sure that our house is all in order and ready to meet her needs as far as health, equipment and whatever else. We have many more challenges ahead of us, but we are ready to take on whatever comes our way.

Liliana is still continuing to improve every day. The nurses have been making us do all of her care while we are at the hospital in order to prepare us for when she comes home. It is definitely going to be a lot different in our home environment. The equipment is going to be different, the setting is going to be different, we will be on our own for most of the day... It is definitely going to be a big adjustment. The best part is that we will be a lot closer to her. We can spend more time with her. We can see her beautiful face whenever we want to. Speaking of beautiful faces her are a couple of her recent images.