Liliana Sue

The time is approaching for Lili to get her g-tube. We were told that they plan to do the surgery this Friday. We are excited and nervous because of her past experiences with her last 2 surgeries. Although, now that they know once again how she reacts to surgery, they are going to finally take that into account. I don't know the exact details at this time. We do not know and will not know what time the surgery will take place until sometime Thursday night. This will mean that she is one step closer to coming home. We are very excited.

Lili is still doing good. She tolerates her CPAP trials for most of the day and rests on ventilator support most of the night. She continues to work her muscles, showing noticeable improvements in her strength. She is starting to utilize her emotions a lot more. Her eyes get red and puffy and tears come rolling down when she is upset. It breaks my heart to see these tears. I've even seen her get those pouty lips when her tears are rolling. I have been pretty good at comforting her and stopping her crying. That is a good feeling. Her personality is really starting to take shape. We love her so much!

Sorry, once again no pictures. When I get a couple new ones on my computer I will add them to this post.