Liliana Sue

Last time I posted, I told you that Liliana is starting to get more refined movement in her arms and legs. Over the past week, she has surprised us once again. She is starting to get some strength in her neck and is able to move her head around a little bit. What we do is put her on her back with a roll under her shoulders and her face toward the ceiling. Then we wiggle our fingers or use a toy going from side to side slowly so that she can follow. When you get so far to the side where her eyes are no longer able to follow, she moves her head. She can't move it very far yet, but we have very high hopes for her and we know she will continue to try harder and harder every day.

No doctors visits this week, so no new measurements to report.

CPAP continues to go great. Over the past week we have changed her schedule from 8a-12p & 7p-11p down to 8a-12p & 4p-8p. She is still doing 4 hours twice a day, but we have closed some of her rest time in the middle. This should help her strengthen more to help her eventually be able to tolerate CPAP all day and rest at night.

We did not get Lili out to the living room this week because we had a busy week and so did Lili. Some days she was so exhausted she fell asleep around 6p and slept throughout the night.

LeeAnn and I had our 3 year wedding anniversary this week. One of our nurses offered to come from 1p-9p so that we could go out and celebrate. I took LeeAnn on a mini shopping spree. She got some clothes and 2 pieces of framed wall art. I also bought some clothes and we got Liliana a real cute purple swimsuit. We also went out to dinner at Rio Bravo, it is one of our favorite places to go for mexican. We had a great day. When we got home Lili was sleeping. We missed her a lot in our short time away from her. We gave her lots of kisses as usual.

Sorry, no new pictures this time, but keep a close lookout, you never know when I will have some new swimsuit pictures on here.