Liliana Sue

Lili is great. I tried her off the vent today for an hour and a half straight. She had no trouble. I hope to try 2 hours straight before we see her doctor again so we can really impress him. So, if you know who the doctor is that we see next week, don't tell him my plan because it is going to be a surprise. Went to work last night and got a call from LeeAnn that our nurse had not shown up. She is sick and required medical attention, hopefully all is well. I ended up leaving work at 11pm, 8 hours early to come home and take care of Lili throughout the night so that LeeAnn could sleep since she had been up all day already. All was good. Lili hardly needs any care at night these days. Just change diapers, turn her, make sure she is sleeping soundly, do her stretches and exercises in the morning and feed her, give her all new cannisters and fluids, and that's about it. Definitely a lot easier than at the hospital!!! We had an awesome night. Tonight our nurse was still under the weather, so I am at it again. Lili is sleeping soundly and all is well. She is so darn cute when she sleepsThese are my new hand splints.This is me being me. Every time my parents try and position my legs straight with rolls so that I don't develop "frog legs", I move my legs all around. I put them anywhere except on the rolls, even when I am sleeping. It's fun!These are my new foot splints. Also, this is me playing with my hair. Sometimes I'm able to get my hand all the way up to my head, it's not easy though. I like the feel of my soft hair on my fingers. Now I see why mommy and daddy always play with my hair.This is me smiling really big. I like to smile with my tongue out, mommy and daddy think it is so cute. I'm smiling because daddy was being really silly so that he could get a picture of one of my award winning smiles to show all of you. I hope you enjoy!

Addendum: Today Liliana woke up early from her 2 o'clock nap so I took her off the vent. I had the time, so we tried our 2 hours straight. She did extremely well as expected. She was really tired from such a short nap and the extra work, but she didn't skip a beat. She was smiley the whole time. What a superstar!!!