Liliana Sue

Well, here are the long awaited birthday pics. We had a grand old time! A lot of my cousins were able to make it but because of a snowstorm and cold season some people had to stay home. It's ok though, they were there with me in spirit. The pictures below show the days events. Mommy and daddy gave me some of my presents in the morning before all the excitement began. You can see me with Hany Manny in picture number one. He is a character in on of my cartoons that I watch. I sometimes walk around carrying my tools saying "I'm Handy Manny". Pictures 2&3 show mine and daddy's birthday cakes. We share the same exact birthday in case you don't know. I just love trains and when mommy asked me what kind of birthday party I wanted, I said Thomas the train. Picture 4 shows me playing with some of the kids. 5,6&7 are me opening gifts. They sure were great gifts as you can see how the kids are flocking around me. Picture 8 is of my cousin Logan. We are the same age. He just loves trash and anything to do with it. He picked up all the wrapping paper for us. I hear he even got a dump truck toy for christmas and a real garbage can. What a lucky boy he is! Picture 9 is of all the kids getting ready for pinata time. It went by age, but I was up first. Good thing daddy practiced hitting the pinata with me ahead of time because it sure is not easy to wack at that thing. 10-16 are all the kids taking their turn at the pinata with number 16 showing the kids chasing the candy that has finally broke free. Me personally, I was scared as heck by how hard those kids were hitting my favorite bird. When the candy spilled out, I didn't knwo what to think. Number 17 is me trying to blow out my own birthday candle. I am getting good at blowing but still do not have enough hot air to blow the candle out yet. 18 & 19 are the kids and I watching a movie and having lots more fun. Number 20 is not the day of my party, but it is of some hats that were worn by some at my party. I got some money for my birthday from a couple of different people. Mommy and daddy used the money to buy me a train table and some train track. I absolutely love it as you can tell by my smiles in the next couple of pictures. It was a perfect day. I wish I could do it every day. I guess I'll just have to wait until the christmas eve celebration and 3 christmas celebrations that I have in store for the end of the month. I hope you enjoy the pictures. For most of you this is not an update, but for those of you who don't see me, I am walking completely on my own now. Daddy bought me some new walking wings for christmas because my other ones were getting pretty raggety. We haven't had to use the new ones yet and probably won't ever have to. It's too bad that mommy already restitched it to fit around my peg tube or else we could return it. Oh well.

Here are a few pics to hold you over until I post some images from my recent birthday party. Things have been going well. If you haven't heard, I had a really bad cold. I am much better now and was well just in time for my birthday party. Good thing, I had a blast with my cousins! There is a good chance I had my first bout with RSV. My nose was draining water like a faucet and I was coughing non stop. I had a couple of low grade fevers. To give me a break from the runny nose and coughing, mommy and daddy had to give me benadryl pretty much around the clock. Without it, I probably wound not have gotten any sleep. I went to the doctor and got some antibiotics early in my infectious process. Two days later when the antibiotics were not working and my illness progressed to a respiratory rate of over 50 (on my vent), a heart rate over 150, a fever, requiring oxygen, and difficult to keep awake despite 14 hours of sleep, mommy and daddy knew it was time to take me in. The ER said it was most likely viral and tested me for RSV although no one ever gave us any results. They also did a chest x-ray which was normal, did some deep suctioning and gave me some breathing treatments. They then sent us home stating that they could not do any more than what we are already doing for her at home. I ended up sleeping just about all of the next two days away before I was getting back to my normal self. Mommy and daddy were exhausted from all the extra care I needed, but they did an excellent job of getting me better. Poor daddy had less than 10 hours of sleep in 3 days. Anyway, I'm back to normal now and enjoyed an excellent third birthday. Enjoy the pictures below and keep an eye out for by birthday pics.
I'm such a big girl now and do many big girl things as you can see. Picture one shows me drinking like a big girl. Pictures 2 and 3 show how I painted my finger and toenails like a big girl. I can even do push ups like a big girl as you can see in pictures 4 and 5. You can see how strong I am getting. I can push my upper body up off the ground holding my head up and everything. I'm even trying to crawl around all by myself. I'm such a snuggle bear. I just love to snuggle with my mommy and daddy. Out of nowhere, I will give them big hugs and say "I love you mommy or I love you daddy". Picture 6 is me snuggling with daddy at the computer. I've gotten so good at playing my games on the computer it's rediculous. I look like an adult when I am playing. I fugured out how to use the touch pad on daddy's laptop and can find my own websites and pick and play games all by myself. Pictures 7-12 were my first out to dinner experience. Mommy and daddy took me to Rainforest Cafe. I absolutely loved. I talked about it for a month and talked about going back just about every day. Picture 13 shows one of my butterflies that I got from the resturaunt, do you see how it landed right on my nose? In case you don't know, I absolutely love trains!!! Picture 14 shows me playing with one of my many trains. I love trains so much, I even had a train theme birthday party. Picture 15 shows my playing the computer like a big girl with a couple of my cousins, Abigail and Gabriel. I love to sit in boxes or whatever else. Pictures 14, 16 and 19 are good examples. Picture 17 shows a doll that I got from one of daddy's friends at work. The doll talks and eats and goes to the bathroom. I love her lots. Thank you Shannon! The next picture is just my beautiful self. I hope you enjoyed and don't forget to keep an eye open for my birthday pics. Love you all lots! Take care of yourselves.